Executive Director - The LAM Foundation - Tenders Global

Executive Director – The LAM Foundation

The LAM Foundation

tendersglobal.net

Position Specification

The LAM Foundation

Executive Director

Remote – some travel required

 

ABOUT THE LAM FOUNDATION

The LAM
Foundation
is a pioneering organization dedicated to advancing
the fight against lymphangioleiomyomatosis (LAM), a rare and
progressive lung disease primarily affecting women. Founded in 1995
as a grassroots initiative, the foundation has emerged as a global
leader in advocating for safe and effective treatments, and
ultimately a cure, for LAM. The mission encompasses advocacy,
funding promising research, and providing invaluable support to the
scientific, medical, and patient communities. With a focus on
serving women with LAM and their families, the foundation offers
comprehensive resources, information, and a worldwide network of
hope and support. Looking ahead, the strategic objectives over the
next five years include targeted scientific research, biomarker
development, drug discovery, clinical trial completion, enhanced
patient care, global outreach, and diversification of the revenue
streams along with increased fundraising efforts to fulfill our
commitment to promising research and ultimately, finding a cure for
LAM.

 

REPORTING TO: The Executive Director reports to
the Board of Directors with annual reviews led by the Governance
Committee.

 

THE OPPORTUNITY

The LAM Foundation is seeking an exceptional Executive Director
(ED) to serve as the leader responsible for advancing strategic
objectives and championing the voice of LAM patients and families.
In partnership with the Board of Directors, the ED will oversee all
facets of operations, finances, and program development, while
expanding the donor base, investigating new revenue sources, and
elevating impact. This role presents a unique opportunity to shape
the future of LAM, and lead with empathy, inclusivity, and
unwavering dedication to the cause.

The ED is responsible to:

  • Recruit and retain a diverse, highly qualified staff and
    volunteers by providing professional and personal growth within a
    structure that fosters a safe, accountable, and team-oriented
    environment.
  • Lead execution of foundation programs and patient
    services.
  • Provide leadership to and manage the best efforts of staff and
    contracted services.
  • Ensure that fund development relationships and activities are
    robust and meet or exceed strategic and budgetary goals.
  • Prepare accurate and timely analyses that capture and
    communicate program outcomes, variances, and performance
    trends.
  • Maintain and nurture positive relationships with stakeholders
    and stakeholder groups.
  • Develop procedures to implement Board policies, ensure
    compliance with legal and regulatory requirements, and comply with
    federal, state and local laws and ordinances.
  • Develop and foster a collaborative and supportive communication
    channel with the members of the board.

 

In addition, the ED will work collegially with officers
appointed by the Board and other stakeholders. The ED collaborates
with and develops a working relationship with the Scientific
Director (SD) and Chief Mission Officer (CMO) appointed and
evaluated by the Board, according to the following principles:

  1. Consistent and timely communications between the SD, CMO, and
    ED related to joint strategies is essential. The ED will work
    collaboratively with the SD and CMO to define and recommend annual
    outcomes to the Board and to agree upon the annual tactics to
    deliver those outcomes. The ED will provide input in forming the
    direction based on a unique understanding of a broad spectrum of
    patient issues/priorities, donor wishes/priorities, and scientific
    and clinically related insights gleaned from interactions with
    these stakeholder communities.
  2. The ED, SD, and CMO are accountable to the Board of Directors
    and will meet periodically with the Chair.

Subject to the principles of shared leadership with the SD and
CMO, the ED will manage all operations and activities, including
providing direction to the staff and ensuring proper fiscal and
operational management.  

Strategic Planning and Execution

  • Work with the Board in its strategic planning process.
  • With Board review and approval, develop an annual plan with
    measurable outcomes consistent with the strategic plan.
  • In partnership with the SD and CMO, provide feedback and
    support for fulfilling the mission of the Foundation, utilizing
    input from multiple sources, including all staff members and
    stakeholder groups.
  • Direct priorities for program activities in a manner consistent
    with the strategic plan, annual plan, and intent of the Board.
  • In partnership with the CMO, identify new opportunities to
    leverage resources in an effort to maximize impact.
  • Participate in meetings, conferences, and review literature to
    maintain current knowledge of the thinking, issues, and people
    influencing issues important to Foundation’s mission.
  • Assess accomplishments, shortfalls and identify potential
    threats, and report on those to the Board to inform future thinking
    and actions.

Internal Operations and Team Management

  • Set the operational procedures for the Foundation and oversee
    their proper execution.
  • Assemble and manage the Foundation’s staff; ensure that the
    Foundation attracts and retains the talent necessary to
    successfully carry out its programs and mission; hire, evaluate,
    discipline according to a progressive disciplinary process, and
    fire staff members as necessary.
  • Establish compensation policy for staff and levels consistent
    with review of overall compensation budget and philosophy by the
    Board including oversight of contracted services.
  • Exercise fiscal stewardship by overseeing the Foundation’s
    investments, budgets, and financial reporting. Regularly report
    financial performance to the Board and its Finance Committee,
    providing insights and recommendations to support informed
    decision-making.
  • Propose annual budgets for the Foundation’s operations and
    programmatic activities.
  • Oversee and approve monthly financial transactions.

Fundraising and Development

  • Directly oversee the implementation of the current fundraising
    plan with a goal of raising $2MM, supervising the efforts of the
    staff director responsible for fundraising campaigns.
  • Facilitate and empower board members to actively engage in fund
    development campaigns. Provide resources, guidance, and support to
    maximize their involvement and leverage their networks for
    fundraising success.
  • Build and nurture relationships with high-value donors,
    focusing on individuals, corporations, and foundations capable of
    making sustained contributions of $5,000 to $10,000 and above.
    Develop personalized cultivation strategies to engage donors in the
    mission and work of the organization, fostering long-term
    partnerships and investment.
  • Take ownership of the bi-annual LAMposium event, reimagining
    its format and structure to optimize profitability for the
    foundation. Develop comprehensive sponsorship packages to attract
    corporate donors and secure financial support.
  • Demonstrate fluency in navigating diverse funding avenues
    beyond traditional fundraising. Take the lead in pursuing federal
    and private grant opportunities, leveraging expertise in the grant
    application process to secure additional resources.

Program Development and Management

  • Ensure that current programs are consistent with the strategic
    plan.
  • Ensure that programs and patient-centered services meet the
    expectations of the Board and other stakeholders and are evaluated
    on a routine basis to make data-driven recommendations for
    improvement, expansion or suspension of programs and services.
  • In partnership with TLF staff, develop and maintain
    relationships with patients, caregivers, and advocacy groups to
    better understand their needs and perspectives.
  • Provide oversight and guidance on the development of new
    programs and program areas, ensure new program ideas have business
    plans that include staffing needs, revenues and expenses along with
    a timeline for implementation.
  • Ensure that new and established collaborations, joint
    initiatives, conferences, and Foundation-supported databases,
    inclusive of patient registries, bio repositories, and clinic
    networks, have business plans and written agreements inclusive of
    staffing needs, revenues and expenses and provisions for
    intellectual property and royalties
  • Convene and lead staff discussions regarding strategic,
    operational, and tactical issues.

External Relations & Communications

  • In partnership with the SD and CMO, advance the mission and
    image of the Foundation by serving as a representative of the
    organization to stakeholders, including the Board, staff, donors
    and/or members, the media, the government, and the general
    public.
  • Advocate for public policy interests at the national level as
    well as to various business sectors, the media, and appropriate
    partner organizations and collaborative entities.
  • Develop and support the Foundation’s communication strategy for
    external positioning.
  • Design and when appropriate, develop (or review) reports,
    publications, presentations, articles, and other communications
    (including web-based and other new media) to disseminate and
    promote the Foundation’s activities.

Board Support

  • Report regularly to the Board on the activities of the
    Foundation and progress toward meeting strategic
    objectives.         
  • Ensure that Board members are kept informed of matters and
    developments that warrant their attention and are kept up-to-date
    on best practices on organizational management and leadership.
  • Work with the Chair to structure and guide Board meetings
    allowing opportunity for discussion and input.
  • Serve as an ex-officio non-voting member of Board committees,
    as appropriate.

Other

  • Travel as required with reimbursement of reasonable
    expenses.
  • Perform other duties as required.

QUALIFICATIONS AND EXPERIENCE

The ED will have demonstrated success in the management of
foundations or comparable organizations and possess sufficient
expertise on relevant issues to make well-informed mission-related
decisions and command the confidence and respect of stakeholders
necessary to serve as the leader of the Foundation.

  • At least 5-10 years of senior-level leadership experience,
    preferably in managing foundations or comparable organizations,
    demonstrating a track record of success in strategic planning,
    budgets, team management, and organizational growth. Proven track
    record of collaborating closely with executive teams, executing
    strategic visions while providing valuable input and fostering
    effective governance.
  • Strong ability to build and sustain relationships with diverse
    stakeholders, including staff, board members, external partners,
    donors, and community members, utilizing excellent interpersonal,
    communication, and networking skills.
  • Demonstrated success in fund development, including
    implementing fundraising strategies, cultivating donor
    relationships, and diversifying revenue streams.
  • Bachelor’s degree required; advanced degree is a plus.

 

COMPENSATION AND BENEFITS

Commensurate with experience. The salary range for this position
will be $165,000- $175,000 annually. In addition, The LAM
Foundation offers a benefits package including comprehensive
medical, dental, & vision insurance, generous PTO, retirement,
cell phone stipend, and much more.


APPLY:
To apply, please submit a resume
and thoughtful cover letter highlighting
your commitment to the mission, skills, and experience as an
operations leader using this link:
https://loxo.co/job/MTM0OTMtN3Q2NjFmMzdtZ2M0NDd6YQ==?t=1710952688120 

Apply on website

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