Job description
The Rare Disease Coordinator will be instrumental in facilitating connections between key stakeholders, including Royal Children’s Hospital (RCH) clinicians and MCRI researchers. You will play a role in supporting families enrolled in RDNow and will foster partnerships between patient support and advocacy groups and the RDNow team.
This position is perfect for an experienced nurse consultant or genetic counsellor looking to transition into a coordination role. This role offers a unique chance to make a meaningful impact in the field of rare diseases.
About your new team
Rare Diseases Now (RDNow) is an innovative initiative dedicated to identifying genetic diagnoses in individuals whose rare disease is unsolved by clinical genomic testing. Based at the Melbourne Children’s Campus, RDNow employs a comprehensive approach to advance our understanding and treatment of rare diseases.
What’s in it for you?
- Maximise your pay through salary packaging including entertainment and novated leases
- Enjoy flexible working options
- Be part of a pioneering program in rare disease care.
- Collaborate with leading clinicians and researchers.
- Make a significant difference in the lives of families affected by rare diseases.
- Be part of a team who are passionate about making a difference
- We value our employees, which is why we offer a health and wellbeing program including free access to an Employee Assistance Program
Your responsibilities include:
- Liaise with research and clinical staff at the Melbourne Children’s Campus to support a campus-wide approach to rare disease care
- Act as a point of contact within the Melbourne Children’s Campus for enquiries regarding RDNow including from researchers, clinicians and families
- Alongside the RDNow genetic counsellors and clinical geneticists, be responsive to patient and family concerns and enquiries
- Prepare family-facing resources for RDNow participants
What we need from you
- Masters of Genetic Counselling, or Bachelor or higher degree qualification in nursing or genetics/genomics or a related field
- Proven high level experience in navigating and negotiating with multiple organisations and professional groups
- Advanced facilitation skills
- Ability to work with a wide range of professionals from different disciplines to deliver project outcomes
For more information regarding responsibilities and requirements please refer to the to the position description. Any specific questions related to this position should be directed to Michelle de Silva at [email protected] using the subject line: Rare Disease Coordinator enquiry via EthicalJobs.
Who we are
Murdoch Children’s Research Institute envisions a transformative future for child health. Our institute is a hub of impactful scientific breakthroughs, particularly in early interventions, enhanced diagnosis, prevention, and potential cures. We thrive on collaborative, multidisciplinary problem-solving to address challenging queries in child health. Committed to inclusivity and respect, we foster a positive working environment that values diverse backgrounds and experiences. As a proud member of the Australian Network on Disability and a dedicated supporter of Science Australia Gender Equity (SAGE), we uphold principles of equal opportunity and diverse representation.
If you are driven, compassionate, and ready to take on a rewarding challenge, we would love to hear from you!
If you feel this role is right for you, please apply with a copy of your resume and cover letter addressing the selection criteria.
For a full list of accountabilities and criteria please click her for viewing of the position description.
We welcome individuals of diverse genders, ages, ethnicities, cultural backgrounds, abilities, religions, and sexual orientations in our workplace. We actively encourage talented individuals from all walks of life to apply for our job openings. Our commitment lies in fostering a workplace that is barrier-free and inclusive, aiming to attract the most skilled candidates.
For any questions related to the recruitment process, feel free to reach out to our Recruitment team at [email protected]. Ensure that you include the position number and job title in the subject line. Please refrain from sharing your application to this email address.
Please note, we reserve the right to close the vacancy prior to the closing date once a sufficient number of applications have been received.
A position description is attached.